I haven’t posted in a few days, but here is what has been going on lately! I was officially “listed” and my waiting time began on Friday April 12, 2013. When they called they told me I was on the list with 9 other people, and that I had no antibodies in my blood. If you are like me, you are probably wondering what in the world that means and how it affects me.

Well, from what I have gathered from numerous blogs and discussions on another website for transplant patients is this….everyone has some type of antibodies in their blood. When you are being considered for a transplant they test you for certain antibodies what could cause problems with the transplant if they do not match exactly to the donor. They are called HLA markers, and the more you have, the harder it is to match you with a donor because of the adverse reactions you could have and also the higher possibility of rejection. They take the number of “markers” you have and put into a form of algorithm and come up with a level called your CRPA level. Well…I do not have any of the “markers” that they test for, so this means I am placed higher on the list because they know they can match me with any O blood type donor, with any of the markers and my body will accept it. This is good news:):)

When they called I also asked if they could possibly tell me my exact place on the list because of this and if they thought my wait would be shorter than 6 months. SHe could not tell me exactly because anything is possible still for those that are ahead of me and if she tolds me an estimated time frame, and for some reason it went beyond what she said…then she could be sued…which I wouldn’t sue anyone, but still..I understand she has to follow procedure:) She did tell me that she would advise that I keep my phone on and on me at ALL times and be available to answer at any time. So that is making me anxious!

I am trying to keep busy and continue going about my everyday “mom” activities and not stop and put my life on hold out of fear that they may call, but it is realy hard sometimes. Brandon keeps talking about it like it is happening right now, and that is stressing me out, especially when I am trying not to think about it and dwell on it…lol:) I know he is just as anxious and nervous as I am. If I were in his place I would be an emoitional mess and stressed out just as much, if not more. He is truely my rock and has listened to every worry, fear and worst case scenario that have come up with and reassured me. He has listened to me cry and question if I am making the right choice and never once complained or made a rash reaction. I wouldn’t want it any other way and I kinow he always has my back, no matter what:)